Anglonordic Charity of the Year

Cambridge Rare Disease Network (CRDN) was the Anglonordic Life Science Conference Charity of the Year for 2022. Delegates had the opportunity to meet CRDN during the conference programme including panel discussions, 1:1 networking and the exhibition.

Delegates had a fun time visiting stand #10 in the exhibit area to get a personalised portrait drawn by our cartoonist, Clive Goddard, in exchange for a donation to CRDN. Donate here

About the Cambridge Rare Disease Network

Cambridge Rare Disease Network is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, and working together, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain. 

"Cambridge Rare Disease Network is absolutely delighted to be selected as the Anglonordic Life Science Charity of the Year for 2022! It is a privilege to be given this opportunity to raise our profile and the challenge of rare diseases amongst key industry leaders and companies with a shared passion for innovation in drug discovery and technology."

Jo Balfour, Managing Director, CRDN

Charity Aims

PROMOTING CROSS-SECTOR COLLABORATION
We bring together all stakeholder groups involved in rare diseases in a spirit of collaboration and understanding by providing opportunities to share, learn, engage and be innovative together to improve the lives of those affected by rare disease. We ensure that the voice of people living with rare conditions is at the heart of all our discussions, events and activities as experts and valued partners. Cambridge Rare Disease Network 

SHARING CAMBRIDGE EXPERTISE WITH THE WORLD
We create and deliver exceptional, engaging and thought-provoking educational events to help address knowledge gaps and to raise awareness about rare disease amongst health professionals, academics, industry, policy makers and the wider public . We provide a platform for UK and international thought leaders and showcase the potential of the Cambridge Cluster – the University of Cambridge, Biomedical Campus and vibrant biotech community on our many Science Parks. Events have powerful patient voices and advocacy groups at their heart. Cambridge Rare Disease Network

BUILDING A LOCAL RARE DISEASE COMMUNITY
We support children and families living with rare disease in our local community by providing activities to reduce isolation, offer peer support, build a community and give them a place to belong. We develop opportunities for adults living with rare conditions to connect, share experiences and form a collective voice to raise awareness and improve local services.